the weirdest prayer request I've ever posted.
/
We're about to go to a friend's house to drop off Zoe and then to the neurologist's office to get 24 or 25 electrodes placed on Robbie's head.
Then they send us home for 48 hours.
I sure hope the tape and goo they use to secure each electrode is strong, because, well, he's a three-year-old boy.
We're rocking a button-down shirt (and will be sporting button-downs until the electrodes are off, since we can't pull things over his head), a new hair cut to help them find his scalp through his mess of hair, and a lizard on the chair who is back in his terrarium and who will not be joining us for the trip.
This EEG is all about getting more info about the electrical activity in his brain. During a seizure, you could say that the brain has an electrical storm that it expressed in the thrashing and lack of consciousness we saw three weeks ago. Which leads to my weird prayer request...
We'll be throwing off his schedule - staying up late and maybe taking a long drive to look at Christmas lights one evening - to lower his seizure threshold. After three weeks of trying to prevent another seizure, we need to do the opposite in the next 48 hours. (To answer the obvious question, yes, this does give me the heebie jeebies.)
I hate asking you - and God - for this. But data is helpful. EEG data during a seizure would tell us and his doctor exactly what we need to know to treat his epilepsy.
So will you join us in asking God to say yes to this weird request?
Thanks.
Then they send us home for 48 hours.
I sure hope the tape and goo they use to secure each electrode is strong, because, well, he's a three-year-old boy.
We're rocking a button-down shirt (and will be sporting button-downs until the electrodes are off, since we can't pull things over his head), a new hair cut to help them find his scalp through his mess of hair, and a lizard on the chair who is back in his terrarium and who will not be joining us for the trip.
This EEG is all about getting more info about the electrical activity in his brain. During a seizure, you could say that the brain has an electrical storm that it expressed in the thrashing and lack of consciousness we saw three weeks ago. Which leads to my weird prayer request...
would you pray with us that Robbie would have a seizure
during the 48-hour EEG?
and that we, as parents, would handle it well?
We'll be throwing off his schedule - staying up late and maybe taking a long drive to look at Christmas lights one evening - to lower his seizure threshold. After three weeks of trying to prevent another seizure, we need to do the opposite in the next 48 hours. (To answer the obvious question, yes, this does give me the heebie jeebies.)
I hate asking you - and God - for this. But data is helpful. EEG data during a seizure would tell us and his doctor exactly what we need to know to treat his epilepsy.
So will you join us in asking God to say yes to this weird request?
Thanks.