When it hits home
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At the end of my last post, I said that I would be posting yesterday about the qualities you want in a special needs ministry coordinator. That post is still coming, just not yesterday and probably not today.
Why?
Because this post is begging to be written first.
This is my upward view every other month. Why? Because I was ushered into the world of special needs in a personal way after the birth of my daughter.
My special needs are called Hashimoto's disease and rheumatoid arthritis, both of which are thankfully under control right now. Part of my RA being under control involves IV drugs every eight weeks. That's nothing compared to the medical baggage carried by many families with special needs, and - as long as my conditions are under control - I don't feel sick most of the time, and I only experience small limitations to mobility.
Even though I knew I would be hanging out with my IV tech yesterday, I didn't know that I would get a follow-up call. If you or anyone in your family has a medically-related special need, you probably know this feeling well: I hate seeing my doctor's office pop up on caller ID shortly after an appointment. In this case, it's that my bloodwork is not looking good for my liver and gallbladder. We've been down this road a bit before, so it wasn't completely unexpected. Except that it kind of was, because I thought we traveled that road for the last time in the fall.
I share this not to request prayer (though I certainly would appreciate that!) but to share a little example of what I hear from families with special needs at our church. Some weeks, months, years are good. Some are more difficult. In some moments, families forget about the special needs in their families, but in other moments they are much more obvious and in your face.
I have great doctors, and I have some appointments, including more tests and an ultrasound, scheduled with them to sort this out. I have great support in my husband and family and friends. I have a wonderful church family that loves us and prays for us and allows us to serve.
Life is good. It's just not always easy.
But God is good. Always. And His yoke is easy, His burden light, His rule sovereign, and His ways perfect.
Why?
Because this post is begging to be written first.
This is my upward view every other month. Why? Because I was ushered into the world of special needs in a personal way after the birth of my daughter.
My special needs are called Hashimoto's disease and rheumatoid arthritis, both of which are thankfully under control right now. Part of my RA being under control involves IV drugs every eight weeks. That's nothing compared to the medical baggage carried by many families with special needs, and - as long as my conditions are under control - I don't feel sick most of the time, and I only experience small limitations to mobility.
Even though I knew I would be hanging out with my IV tech yesterday, I didn't know that I would get a follow-up call. If you or anyone in your family has a medically-related special need, you probably know this feeling well: I hate seeing my doctor's office pop up on caller ID shortly after an appointment. In this case, it's that my bloodwork is not looking good for my liver and gallbladder. We've been down this road a bit before, so it wasn't completely unexpected. Except that it kind of was, because I thought we traveled that road for the last time in the fall.
I share this not to request prayer (though I certainly would appreciate that!) but to share a little example of what I hear from families with special needs at our church. Some weeks, months, years are good. Some are more difficult. In some moments, families forget about the special needs in their families, but in other moments they are much more obvious and in your face.
I have great doctors, and I have some appointments, including more tests and an ultrasound, scheduled with them to sort this out. I have great support in my husband and family and friends. I have a wonderful church family that loves us and prays for us and allows us to serve.
Life is good. It's just not always easy.
But God is good. Always. And His yoke is easy, His burden light, His rule sovereign, and His ways perfect.