Welcoming parents



Whenever I know we'll have a new family visiting, I line up others to cover the tasks I usually do on Sunday morning so that I can be fully available. Sometimes I only have to greet the family, help mom and/or dad find the right classroom, introduce the volunteers - both the teachers and, if needed, the one-on-one buddy - and walk them to the worship center (we have a large building, so it's not always intuitive to find the service). Other times - like this past Sunday - I spend the entire Sunday school hour with one of the parents, usually the mom, who isn't ready to go to service and would prefer to hang around in case her child(ren) are having a tough time.

Either way, I'm happy to move at their pace.

Here is my list of tips for welcoming parents of individuals with special needs (usually children, sometimes adults who need the support of living at home with their parents; we also talk with caregivers from group homes and other facilities when they are the ones bringing an adult with disabilities to the church, and some - though not all - of these tips apply to those interactions as well). Because this list focuses on the parents, I'll use "child" to refer to adults and children; I might be grown up, but I'm still my momma and daddy's child and will always be.

  • Learn from them. While I do impart information about what we offer during our first conversation, my first priority is to learn from them. They know far more about their children than I ever will. Steve Wright, our pastor of family discipleship with who I am privileged to serve, keeps a container of 112 ping pong balls in his office. Two are black, and the rest are white. Those balls represent the waking hours in a week (assuming eight hours of sleep, so I joked with him the other day that he needs to add more white balls for most of our middle and high school students!). The black balls are the hours spent in our various ministries, and the white ones are the ones spent outside of church. The lesson? We're missing out if we only focus on the black balls. To truly impact our communities, we need to plug into those white ball hours - equipping families to worship God with their lives outside of church and to share the hope they have in Christ with others. And while we learn a lot about our friends with special needs at church, we can learn more if we find out what their lives are like during the white ball hours.
  • Respect where they're at right now. I love the quote in the image (source: here) at the beginning of this post. We don't know the battle being fought by anyone who enters our church buildings or any other area of our lives. We don't need to know it. All we need to know is the grace we've received from God in Christ as the sacrifice we needed but could never deserve. Once we know that grace, we can impart it to others.
  • Encourage parents to trust you and your team. It is huge for them to trust you with their child. Huge. At this time of year, my Facebook feed is full of teary posts about friends who are sending children off to college or school. Take that emotion and concern, and dial it up by a factor of about 10, and then you'll begin to understand how parents of individuals with special needs might feel about leaving their children in Sunday school. 
  • Don't be put off by hesitance or hostility. I'll be posting more about this in the future, but please understand that most of these parents have been burned before. As such, they might not being willing to share much with you or they may be pushy because they expect a fight. Don't let either attitude surprise you or make you defensive.
  • Have a plan for what you'll do if a parent asks to stay in class with their child. In addition to hostility and hesitance, the final "h" we see from parents is "helicoptering." It's hard to just drop a child off, regardless of the abilities, but - unlike with some other parents - it's not overprotectiveness for parents of kids with special needs; it's just protectiveness. We discourage parents from staying in class, though, for two reasons: (1) we want to give parents a chance to engage in our church community outside of their child's class and (2) we require background checks for all volunteers in our children's, student, and Access Ministry classes as a safety measure. Last Sunday the mom we had visiting our church asked if she could stay, and my response was, "Certainly! However, because we require all volunteers in the classroom to have background checks, let's step into the hall instead of staying here in the room." This enabled our Access buddy to take some ownership in the classroom, mom to stay nearby, and me to usher her into the hall, and it did so in a way that helped her feel more comfortable, as she commented, "wow, background checks. That's such a good idea for churches." 
  • Allow parents to serve if they want to, but don't require it. We try to protect our parents by not requiring them to serve, but we have one who prefers it and who has served as her son's one-on-one buddy for most of the past fifteen years and we have another who has asked if we would be okay with her serving as the buddy for her preschool son this coming year. If parents serve, though, they require background checks before they can volunteer in the classroom.
  • Show joy in serving. I had one mom tell me that she liked our church because unlike others, we included her son ... and unlike other churches who were willing to include her son, we didn't make it seem like they were a burden for us. I can get into a task-oriented mindset that gets the job done but that doesn't show that I love people, and that's not okay. The tasks only matter because the people matter. You serve well if you serve with joy, and parents will be more comfortable if they see that.
What else would you - as a parent or as a ministry worker - add to this?


Weekly round-up {8/22/11}

Hi, friends! Sorry this didn't get out as early as usual, but it's been for good reasons: I've been hard at work on some plans for Access Ministry in our church, as well as meeting with parents and redesigning some of what we do in response to what I'm hearing from them. Good stuff, very good stuff.

Tim Challies posted today with ten tips for teaching young children about God. Many of these tips also apply to people of varying abilities at older ages as well.

This article about being courteous and helpful to people with disabilities in retail settings could also apply to us in the church: Pay attention. Offer help if it might be needed. If a reasonable accommodation is requested, honor it, even if it requires a little effort to execute. Show that people matter with your actions, not just your words.

I love this idea for quarterly meet-ups with others engaging in special needs ministry in your city/area. I don't have the time right now to get that going in Raleigh, but I've added it to my "in the next year or two" plans.

Key Ministry and the Pajama Conference is hosting the first Special Needs Ministry Web Summit, called the Inclusion Fusion, on November 3rd through 5th this year. I'll be part of it (YAY!), and it will be a free event you can participate in from your office or home. Check out more info here.

When I taught special education in public school in Rio Grande City, Texas, I connected best with students and families by doing home visits. It helped me understand their lives when I interacted with them outside of school, and it helped them see that I cared about them beyond the 50 minutes they spent in my classroom. This column about some of the debate surrounding home visits and the accompanying comments were intriguing to me, and I bring it up because I think home visits can be beneficial to get to know the individuals in your church's special needs ministry as well. (Another consideration: We reciprocate by inviting them into our home too. We're hoping to sell our current home and move to a wheelchair accessible home within the next year so we can do this with all of our Access Ministry families. We don't just aim to do church together; we want to truly do life together.)

This about.com article, Eight Reasons to Be Inclusive, is a great reminder of why we do what we do.

I can't recommend this entire article - in part, because it was hard to follow - but this quote stood out:
“They [the parents] are forced to make choices other families never even consider:  Can we go to church?  Will we be invited to a family Thanksgiving celebration?  Can I stop for a gallon of milk?  And often, the answer leads to another burden:  they can do those things, but separately.  Except for the times when I’ve been in their house, I’ve never once in eight years seen Bob and Jane together in public.”
...food for thought, huh? What can we do so that "can we go to church?" isn't a question that parents of kids with special needs have to consider?

If you're in the Tuscaloosa area, this church-based art program for kids with autism could use supplies. Check out the info here.

I guest blogged this week at Rest Ministries with a post previously published here: Raise Your Hands if You Really Love Jesus

Jackie Mills-Fernald from McLean Bible Church posted about Communicating and Collaborating with Parents in special needs ministry. Well worth the read!

News bits I found this week about faith groups who are including people with special needs...
Hope you've had a great Monday!

Fridays from the Families: Unspokens

I've been following Jeneil's blog, Rhema's Hope, for many months. She is married to Brandon and has two daughters, Rhema (who have autism and a seizure disorder) and Hope. I love her writing and her perspective. She is graciously allowing me to share this post with you, and I know you'll be thankful for it.

Rhema was a few months shy of her 2nd birthday when she started receiving speech therapy. There was no autism diagnosis yet, but tests indicated a hearing loss due to fluid buildup in her ears. Ear tubes were quickly inserted, and we waited with baited breath for the promised language explosion.

Messages to my faithful friend Cha:
Dec 2005
since she can hear significantly better now, the speech and language should improve. i’m praying to see major improvements very soon… like NOW.
Jan 2006
she is starting to say some words… maybe? i still would prefer that she be quoting shakespeare by now. but there goes God teaching me patience and trust again. =) i’ve even enrolled in a speech therapy class myself – i have homework and everything! trying to do what i can to help rhema catch up…
March 2006
I’m so impatient. I want her to talk, talk, talk and understand everything I teach her. She’s nowhere close to where I want her to be…

Five years and an autism and seizure diagnosis later, Rhema is still pre-verbal. Never has my desire for her to ‘talk, talk, talk’ wavered. In fact, as she grows older the longing to know her heart-thoughts — to have even just one real conversation with my girl– only intensifies.

I was thinking about a funny practice we had in my church youth group. The leader would ask if anyone had any prayer requests. Then he’d ask for “unspokens.” Those were prayers requests that you had but didn’t want to say out loud, so you just quietly raised your hand. Then we’d all pray for the “unspokens.” God heard every word, every request of the heart, even if it was unspoken.

It dawned on me that Rhema has many unspokens. Oh, how she speaks…

Her big toothy smile and giggles tell me she is so happy to be here

Her soft hums say she’s content

Her deep gaze with big brown eyes whispers ‘I know I’m safe with you’

Her spontaneous hug is the only way she knows to say thank you

Her shrieks are excitement uncontained

Her wailing usually means ‘I need cheese or a popsicle stat.’

Her very life is one beautiful, unending song: God is good!

Brandon sent the following message to a friend after Rhema’s ear tube surgery. He could not have known…:
She’s BEGINNING to talk…very little, but my estimate is that she was about 8 months behind, so I anticipate a daughter that we can’t get to stop talking in about 5 more months… You know her name means “God’s spoken word to the soul/heart” as it is used in the Bible. We always prayed that she would be a witness for Christ…and for months we were afraid that she might not even be able to hear or speak. I quietly thought that perhaps the Lord was going to use her to speak in ways that words might not be able to…that she might have a special gift of communicating or living that spoke of Jesus in speechless ways…but it was ironic that we called her that name and went thru about 1 year wondering if she would ever speak…but she won’t be silenced. Jeneil says we will always tell her of this time and the prayers we prayed…and how special her gift of speaking is…
(Smile). Sometimes God’s plans for our children are even bigger than our own.

I daresay, Rhema - and the precious ones like her - do and will speak of Him in ways that words cannot.

And I believe there will be a day (if not in this life, then in heaven) when she will hear and respond and talk and sing to her Maker forever; she will be unhindered by autism.

Until then, there is much to hear.


~+~
If you'd like to read a couple other related posts written by Jeneil, see Autism at Church, Part 1 and Autism at Church Part 2.

Past. Present. Future.

Don't Let Yesterday - Cherokee Proverb Magnet

It's easy - in any area of life, but particularly at church - to let the past dictate future responses.

"No, we can't do that because we've always done it this way."

"No, we don't go to church because we went once [or twice or...] and it wasn't a good experience. So we just worship God from home."

"No, none of the other churches in the area have ever done anything like that, so it probably isn't wise for us to try either."

"Yes, I know her, but she flaked out on a volunteer commitment before, so I'm not going to even respond to her email expressing interest in serving again. She won't follow through."

"Last time I approached that mom, she blew me off rudely. I'll just focus on the more responsive parents."

"We had one of those autistic kids come to our church before. It was too hard to have him in class."

"Every church we've visited doesn't seem to know what to do with the needs of our family. It's just not worth it." 

"There's no point in bothering with families with special needs at our church. They've never stayed for long in the past, so we should focus our efforts in an area in which we can have better results."

Yes, some of those statements are hard to swallow, but I've heard variations of each one. But look back to the image above: Don't let yesterday use up too much of today.

And, as far as future worries go, "Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble." (That would be Matthew 6:34.)

And concerning anxiety for yesterday, today, or tomorrow, how about this one? "Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus." (That one is Philippians 4:6-7.)

Learn from the past. Live in the present. Dream and plan for the future. Don't sacrifice one for the other, and don't let anxiety creep into any of them. 

And recognize, worship, and follow the Author of yesterday, today, and tomorrow. Find comfort in the truth of Hebrews 13:8: "Jesus Christ is the same yesterday and today and forever."  

Amen.

The simple story of a mom's winsome church advocacy

As I prepared for Monday's weekly round-up, I came across this snippet about Jose Angel Oliveras, a guy raising money for autism awareness:
Oliveras was exposed to autism by the mother of an autistic child through his church. As she is a proactive volunteer for the cause, Oliveras was touched and became fully involved. Just the way he was moved by others, Oliveras wishes he can do the same. “I want to continue doing triathlon for autism. Along the way, I also hope I inspire others to do something positive. I need more people to carry the torch.”
What a fantastic model of how parents can influence others to join them in carrying the torch!